Jax's day started out pretty great. He took a 2 hour mid morning nap, played with Grandma all day, but then didn't want to take his afternoon nap, fell asleep too early in the evening and awoke around 6 pm cranky.
So, I figured he's up let's feed him...he had a little bottle and then half a piece of wheat bread and some soy pudding. 10 minutes after he finished that...vomitted a little in his high chair, but not a lot. So, wen't upstairs to get his jammies on and administer his evening zantac. He was shaking his head 'no' when I was giving him the zantac, but I didn't put much stock in it, just figured he didn't want to take his meds. 2 minutes later mama and Jax were covered in what can only be described as projectile vomit. Yuck.
I get a little freaked out when he vomits like that as I'm never sure what to make of it - CDH or just upset tummy? We'll watch him closely tonight and hope he's back to his happy self tomorrow morning!
This blog is a place for us (Jaxson's mom and dad) to share his CDH story. Our hope is that this blog will help other CDH families who just starting their journey.
Thursday, April 23, 2009
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Welcome Jaxson's CDH Journey
Jaxson is a CDH survivor and this blog follows his story and our ongoing efforts to spread the word about CDH.
Jaxson was diagnosed with LCDH at our 20 week ultrasound. His stomach, intestines, spleen, apendix and left lobe of the liver had all herniated into his chest cavity. We were told his chances of survival were less than 50% and that he had an 80% chance of going on ECMO.
He was born at Hospital of the University of Pennsylvania and transported next door to CHOP on 5-19-08. He did not go on ECMO, had his repair on 5-23-08, came off the ventilator on 6-6-08, breathing on his own by 6-12-08 and was discharged after 37 days in the NICU.
He is our CDH rock star!
Jaxson was diagnosed with LCDH at our 20 week ultrasound. His stomach, intestines, spleen, apendix and left lobe of the liver had all herniated into his chest cavity. We were told his chances of survival were less than 50% and that he had an 80% chance of going on ECMO.
He was born at Hospital of the University of Pennsylvania and transported next door to CHOP on 5-19-08. He did not go on ECMO, had his repair on 5-23-08, came off the ventilator on 6-6-08, breathing on his own by 6-12-08 and was discharged after 37 days in the NICU.
He is our CDH rock star!
Projectile vomit is NO FUN!
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