Tuesday, February 23, 2010

A Snow-filled Winter

Winter in Pittsburgh is usually cold and somewhat snowy, but this year it's been excessive as the snow has hit so many parts of the East Coast and Midwest. Jaxson has loved seeing the snow and saying 'snow' and cold although we haven't taken him out in it much. I am probably being overly cautious, but we've been so lucky at how healthy and cold-free he's been, I really don't want to push our luck.

His vocab is increasing at such an alarming rate...he heard me say step stool yesterday and he's been walking around saying it ever since. He can say some pretty complex words including chocolate...much to our chagrin! And on Friday he had his 21 month check up and I mentioned in the car along the way that we were heading to see Dr. Leslie and wouldn't you know he started saying Doctor Leslie. Typing these words does not do them justice, the way he says them is just awesome, precious really!

So, I'm happy to report that he is at the 15% percentile for weight. He's never gotten over 10th, so we are happy about that! He's in the 50th for height.

We started going to a new kids gym last week and it's been great for him. He loves to climb, jump, socialize with the other kids, etc. He climbed on the rock wall today and you would think he's been doing it all his life. The folks at the gym were quite shocked at his development level for his age. We have him in the 2 year old class and he can pretty much hold his own with them.

We've had a few fun visits this month - cousin Lynda stopped by the first week of February to see Jax (although Barry and I were in Cabo at the time so we missed her), Perry jetted in from Seattle for a quick visit over Valentine's weekend, and my dad (or Pop Pop as Jax refers to him) stopped by for a few hours in between business meetings.

I'm sure there is much more to report on, but overall he's doing great and we are so blessed and thankful. Also, if you're interested Jaxson's Jog 2010 will be held on May 22 at North Park in Allison Park, PA. All the latest info is online at www.jaxsonsjog.com or you can join our Facebook page at www.facebook.com/jaxsonsjog.

Please keep all of the CDH babies on the way and in the NICU in your thoughts/prayers.

Welcome Jaxson's CDH Journey

Jaxson is a CDH survivor and this blog follows his story and our ongoing efforts to spread the word about CDH.

Jaxson was diagnosed with LCDH at our 20 week ultrasound. His stomach, intestines, spleen, apendix and left lobe of the liver had all herniated into his chest cavity. We were told his chances of survival were less than 50% and that he had an 80% chance of going on ECMO.

He was born at Hospital of the University of Pennsylvania and transported next door to CHOP on 5-19-08. He did not go on ECMO, had his repair on 5-23-08, came off the ventilator on 6-6-08, breathing on his own by 6-12-08 and was discharged after 37 days in the NICU.

He is our CDH rock star!