New to bloggin'

So, I'm pretty new to this blogging thing, so bare with me! In my last post, I described our first ultrasound where we found out that Jaxson had CDH. The days after that news were slow and long. We went back two days after that first ultrasound for an amnio to rule out other possible complications. Waiting for those results was excruciating. The days went by and we were trying to stay busy and learn as much as we could about CDH. Many tears were shed and many prayers were said. The results of the amnio came back and luckily we were not dealing with any other complications.

We turned our energy to researching the best place to transfer Jaxson's care once we was born. In our research we decided we would look at Children's hospital of Pittsburgh as well as Children's in Philadelphia. If we didn't like either of those options we were going to expand to Cincinnati and possible even UCSF in San Francisco. The experience in Pittsburgh was uneventful - we met with a surgeon, he answered our questions, we left. There was no tour of the NICU, no tests on me because they don't have a fetal maternal program there and no assurance that this was the best place for a CDH child. So, we headed to Philadelphia. We stayed with relatives on my side. We arrived in Valley Forge on a chilly February evening to the warm and inviting home of cousin Lynda and Russ. We were nervous about the next day of appointments at CHOP, but looking forward to it as well. There would be more in-depth testing, there was an entire protocol and agenda for this visit. The planner in me felt at ease before we even arrived. My mind was almost already made up before we even set foot on the first hospital built in the US.