I came home this evening after a long car trip anxious to catch up on CDH blogs. I was very sad to read that Ireland Rose lost her battle against CDH. She fought bravely on ECMO for many days. Her parents, Mike and Chanda had to make a decision that no parent should ever have to make. Please keep the Brady family in your thoughts and prayers.
Welcome Jaxson's CDH Journey
Jaxson is a CDH survivor and this blog follows his story and our ongoing efforts to spread the word about CDH.
Jaxson was diagnosed with LCDH at our 20 week ultrasound. His stomach, intestines, spleen, apendix and left lobe of the liver had all herniated into his chest cavity. We were told his chances of survival were less than 50% and that he had an 80% chance of going on ECMO.
He was born at Hospital of the University of Pennsylvania and transported next door to CHOP on 5-19-08. He did not go on ECMO, had his repair on 5-23-08, came off the ventilator on 6-6-08, breathing on his own by 6-12-08 and was discharged after 37 days in the NICU.
He is our CDH rock star!
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