Sunday, August 30, 2009
Angel Ireland Rose
I came home this evening after a long car trip anxious to catch up on CDH blogs. I was very sad to read that Ireland Rose lost her battle against CDH. She fought bravely on ECMO for many days. Her parents, Mike and Chanda had to make a decision that no parent should ever have to make. Please keep the Brady family in your thoughts and prayers.
Wednesday, August 26, 2009
Proud to be a CDH parent
I just wanted to put up a post about how proud I am to be a part of a such an amazing community of CDH parents and all of those out there supporting CDH families deserve to be recognized as well.
I follow too many CDH blogs to count but each one is special to me. They are each unique, different, important and allow us to be a part of their CDH journey. I feverishly read them whenever I have a spare moment. I'm reading to find out how CDH children are doing, how their parents are coping, and I offer support where I can. I read their blog posts and then I read down the list of amazing supportive comments left by many other CDH parents. It just touches me to read these comments of support and hope because they are pure, sincere words from parents who know, who get it. I know how much I needed those comments when Jaxson was at his sickest. I hung onto every word someone wrote down for us, supporting us and lifting us up. It was an amazing part of our journey with Jaxson and it helped us immensely. It carried us on down days.
The CDH community is awesome and I'm so proud to be a part of it. Ok, I'm done gushing. I'd like to end with a request for you to please pray for Max (on ECMO), Ireland (On ECMO), Carter (CDHer recovering from open heart surgery), Gia (recently had Nissen surgery), MJ (resting post surgery) and I'm sure I'm missing some babes that need support so please just pray pray pray for CDHers everywhere!
Thank you,
Sarah
I follow too many CDH blogs to count but each one is special to me. They are each unique, different, important and allow us to be a part of their CDH journey. I feverishly read them whenever I have a spare moment. I'm reading to find out how CDH children are doing, how their parents are coping, and I offer support where I can. I read their blog posts and then I read down the list of amazing supportive comments left by many other CDH parents. It just touches me to read these comments of support and hope because they are pure, sincere words from parents who know, who get it. I know how much I needed those comments when Jaxson was at his sickest. I hung onto every word someone wrote down for us, supporting us and lifting us up. It was an amazing part of our journey with Jaxson and it helped us immensely. It carried us on down days.
The CDH community is awesome and I'm so proud to be a part of it. Ok, I'm done gushing. I'd like to end with a request for you to please pray for Max (on ECMO), Ireland (On ECMO), Carter (CDHer recovering from open heart surgery), Gia (recently had Nissen surgery), MJ (resting post surgery) and I'm sure I'm missing some babes that need support so please just pray pray pray for CDHers everywhere!
Thank you,
Sarah
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