So, I've been brewing this idea for some time and have finally started taking action to make it a reality. First let me be clear...I have no experience shooting a documentary! I hope to line up advisors, volunteers and folks with experience to help me make it a success.
I have immersed myself in many blogs, carepages, facebook pages, etc of other CDH families and their stories since we received our diagnosis. I feel connected to them as if I knew them personally although I've only met a few of them. Day in and day out I read their updates and cheer when something great happens, pray when something not so great happens and cry more often than not at what I can only describe as the most touching posts I've ever read.
I decided after Jaxson's Jog that I needed to continue to spread the word about CDH so that this birth defect and this amazing CDH community can be known to many instead of a few. I participated in Letters for CDH on July 15 and again I felt proud to be a part of such an amazing community. Praying for families daily and commenting on others' blogs is I suppose another way. But, the documentary is my next project.
I'm certainly afraid that I won't get this documentary right and I'm afraid it won't accomplish my goal of making CDH as well known as Cystic Fibrosis and Spina Bifida. However, I have to believe that it is possible. I hope to present information about the defect along with as many CDH stories and journeys as possible.
If you're a CDH family reading this post I need your help to make sure this documentary is great. If you would like to participate, please email me at sarahjmayer23@yahoo.com.
Also, I have started a Fundable page for donations toward the production costs. If you're interested in giving you can check it out at: http://www.fundable.com/groupactions/groupaction.2009-07-29.1606099984
Thank you!
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