Monday, January 17, 2011

Long Over Due Jaxson Update

I haven't posted an update since July...ugh and sorry!  I can say I've been busy and other such excuses, but bottom line I just haven't made time for this blog.  I have new adventures, but I'll save those for later.

Jaxson is 2 years old, but only 5 months from his third birthday.  He's up to so many new things - talking up a storm, trying to understand numbers, words, sounds, etc, helping mama in the kitchen, playing with his cars, trucks and animals and soo much more.  He's discovered TV...not my favorite hobby of his, but it was inevitable.  He's really into batman and superman.  In my book, this makes perfect sense since he's a CDH super hero.   See his favorite toy below...batman complete with bad guys and batmobile!



We did not have any medical issues or complications due to CDH in 2010,,,blessing!  But, CDH is never far from our thoughts.  I've been off the CDH radar lately, but I do try to keep on top of new CDH families that need our support.  There is currently a family here in Pittsburgh going through a CDH journey.  They have a blog that I encourage you to visit and offer words of support if you can.  Visit there blog at http://rootingforramsey.blogspot.com/

As for those other adventures I mentioned at the top of this post...I am officially a full time entrepreneur! As of January 1, my role is as CEO of Infiniti Solutions, LLC.  Please feel free to check out our rough website at http://www.infinitisolutionsinc.com.  Infiniti Events, LLC is the event division of the company and it has been around since 2004.  Behind the Scenes is the blog for Infiniti Events, so please check that out too!  http://blog.infinitieventsinc.com.

I wish you all a happy and healthy 2011!

Welcome Jaxson's CDH Journey

Jaxson is a CDH survivor and this blog follows his story and our ongoing efforts to spread the word about CDH.

Jaxson was diagnosed with LCDH at our 20 week ultrasound. His stomach, intestines, spleen, apendix and left lobe of the liver had all herniated into his chest cavity. We were told his chances of survival were less than 50% and that he had an 80% chance of going on ECMO.

He was born at Hospital of the University of Pennsylvania and transported next door to CHOP on 5-19-08. He did not go on ECMO, had his repair on 5-23-08, came off the ventilator on 6-6-08, breathing on his own by 6-12-08 and was discharged after 37 days in the NICU.

He is our CDH rock star!